June 28, 2011

Tuesday, June 28, 2011 12:05 PM, CDT

9 months

Lucas had his 9 month appointment yesterday. He is growing. Might seem small for most of you but he is a big boy. 27.5 in tall and 17.2lbs. Everything is going great with him. We are so lucky.
He has learned a couple signs. EAT and MORE, go figure. He loves to eat. He thinks he should have everything we have.
We practice sitting and he can sit about 15 seconds alone. He tries to crawl, we are getting some hip helpers to keep him from being "frog legged".
The helmet is coming along fine. Maybe 6 more weeks. He is a trooper when it comes to the helmet.

We have had some family issues come up. I have decided to stay away from my parents. I have a niece that lives there and she has a life sytle that is not appropriate. She also has a little boy that was born 5 days after Lucas. Of course he is a typical child and is on target with the typical children. She has recently made a comment that my sister and I are jealous because she has a perfect baby and ours are defective. Well no one said anything to her. Just shows me how small minded people can be.

We are starting our begging for donations for the Step Up for Down Syndrome walk. This is a walk that benefits the Down Syndrome Guild of KC. If you would like more info let me know. I think it is great that they work so hard in getting the word out what Down syndrome isn't. It is a lot of work even for me to try and correct people who use the R word and mean it so hurtful. Trying to tell people that these children are children and not a syndrome. So if you would be so kind if you find yourself using the R word, to try and correct yourself and others. And please refer to the children and adults with Down syndrome as the person they are first. They do have Down syndrome, not Downs and not DS. Teachers who work with children with Down syndrome are Teachers who teach children with Down syndrome, not they teach downs kids. Just so demeaning to a perfect human being. A gift from God.
Thanks for listening. Please if you have any questions, I like for people to ask me and not just assume or be afraid to hurt my feelings. I like to explain and teach about Down syndrome.

June 15, 2011

Wednesday, June 15, 2011 2:54 PM, CDT

Been a really long time

Ok so I have had some medical issues of my own so it has been hard to keep up here.
I had surgery 2 weeks ago and on the mend!  Yeah Me
Lucas is doing great. We are practicing sitting up. He can almost army crawl now. Very cute. He is all over the place with rolling and pivoting. He is just amazing. Still a happy baby. He actually spent 2 nights alone with daddy while mommy was in the hospital and he stay the night with Grandma Chris for the first time. Mommy don't like that but I know I have to share once in a while.
His head is rounding out so well. I can't wait for the Hat as I call it, his helmet to be gone. I miss his little hairs touching my face when I hold him.
He is loving the weather now that is a little nicer now and then. Lucas has been going to the races to watch daddy race. Nothing scares him and he can actually sleep through that noise.
Getting a laptop, hopefully, soon. Starting school but I will also have an easier time updating.

https://secure.ezeventsolutions.com/fr/FDFDS/2011StepUp/CoolHandLucas

Check out this link. It is for Step up For Down syndrome walk in October. All it cost is the registration fee and you get all the fun food and tshirt with that cost plus the money goes to a great organization. Lucas would love to see you there.

May 23, 2011

Monday, May 23, 2011 12:52 PM, CDT

I am Lame

Ok so it has been a long long while since I updated.  Just trudging along day by day and they seem to go by so fast.
Lucas is still rolling everywhere. It is harder for him to sit up but we are practicing that skill. He is still happy happy happy. I am so fortunate. He loves to play in his excersaucer and jump. Very cute. He is making little progresses here and there. He can pick up some puffs and just look at them but can't make the hand move to the mouth. He can hold his bottle for long periods also. Can't believe he will be 8 months old on Wednesday.
We did go back to get the adjustment on his helmet. His head has increased 4mm from front to back. May not seem like much but it is making a big difference.
We don't have a lot to report. We go outside as much as possible. Lucas loves it out there.

I will try to update sooner. I will be having surgery next week so I will not want to sit here at the computer. Haven't had time to get a laptop.
Take care and thanks for stopping in.

May 3, 2011

Tuesday, May 3, 2011 6:31 AM, CDT

Lucas

Sorry it has been a while. Sometimes the days just go by in a flash and then it has been almost a week.

Last week we were just getting use to the helmet. More me than him. He started 23 hours a day last Friday. He really don't mind it. The worst of it is getting the thing on and off. Not an easy task. He loves to turn his head and wants to look at it. Funny to watch him but so hard to hold him. I have it down now. Daddy has to work at little harder at it and will get a little faster.
Lucas wakes up and usually his head and helmet smells like a dirty sock. Gross. You wouldn't think a cute little guy could smell like a sock. That is the only way to describe it. So I have to wash his head and the helmet also so he doesn't offend.
We go back on Monday to get an adjustment made. The part that was making his check really red doesn't do that but I am still going to see if they can do something with that part.

Lucas is getting really vocal. He carries on his own conversations. I was noticing last night how he is slower than my other boys. It don't bother me a whole lot unless I start thinking about it. All my boys were sitting already and scooting everywhere. Maybe not crawling yet but close. They could also hold their bottles by themselves. He tries but you can see how hard it is for him. He practiced last night with daddy and even put the bottle back in his mouth a couple of times.
I do notice how tiny he is. He isn't growing as quickly now it seems. Lucas sure has a HUGE smile.
He loves to play with his feet now. I know that seems like such a small task to most but to us it is a big step.
Lucas plays on the floor a lot more and is happy about it. He will roll and play so much he will fall asleep. Very cute to see that. One minute I hear him creaking and talking and then he is out.
He loves it outside. So content when we can go outside.  Come on nicer weather.

Sat night we went to Ashton's cub scout ceremony, Ashton is now a Wolf. Graduated from a Tiger. Lucas was a good boy then we left there and went to the races to watch his daddy. He loves the races. He will watch those noisy things go by and then look up at me and grin and do it all over again. His little head just goes from side to side.

I will try and keep you updated a little more often. Hard to do on weekends when we go to Lucas' daddy's. I have no internet and no phone reception.

April 27, 2011

Wednesday, April 27, 2011 10:01 PM, CDT

Something New

Today my little one started doing the raspberries. Slobber running everywhere and he does it until he runs out of breath. It is so amazing at each little task he masters.
I am so fortunate that he is moving right along. I have such high hopes for him and his future.

He loves to yell AAAAA at you to get your attention. We have been working on momma and ma ma ma ma. Someday soon.

More helmet wearing. 4 hours on and 1 hour off and tonite is the first night sleeping in it. I sure hope it goes ok. He still don't seem to mind it and the little spots of red don't seem to be there any longer either.

I still look at him and tell him I am sorry. It hurts. I don't want to see my baby go through this. I have to keep telling myself it is for a short time.

And for some fun stuff. Nathan found almost 1/2 of a 5 gal bucket full of mushrooms. I am going to be cooking some yummy ones tomorrow.

I am also going to try and find me a lap top so I can look at some online classes.  I will not let this opportunity pass me by again and not get some kind of training while I am at home and have a chance. Just have to find the wireless laptop so I can work while baby plays. Wish me luck!!

April 26, 2011

Tuesday, April 26, 2011 9:56 PM, CDT

Great News Today!!!!

Today I received a call from the doctor's office. I saw that phone number show up and my stomach was in knots.
I was waiting for his blood test results for his thyroid level.
Well.....It was 3.5!  YEAH!!!!! 0 - 7 is normal. All those blood draws when is was just weeks old kept coming back as high. December was 6.5 so he was in the clear. In March we went to his Down Syndrome Clinic appt and they wanted another reading. It came back at 9.5. Just crazy, a roller coaster ride I didn't want to be on. Sure was not fun.
So this is great news for him to be in the normal range.
Lucas goes back when he is a year old and if the numbers are the same he will only have to be tested once a year unless something comes up.

Today is also day 2 of the helmet. 2 hours on and 1 hour off. Not sleeping in it.