April 21, 2011

Thursday, April 21, 2011 10:26 PM, CDT

Helmet Woes

Tomorrow we will be going to get Lucas' helmet. Lucas has Brachycelphy aka a flat head.
I have been told since he was about 3 months to not let him lay flat except at night. I didn't. Lucas is a great sleeper and has been since he was 2 weeks old. Sleeps all night. He was born with a flat head and it has gotten flatter but what could I do? I tried the repotioning. I held him a lot. I mean a lot just to keep his head up. I hate to hear people tell me to do this or that. I have done this and have done that. There is nothing more I can do.
I am little worried about this. I just don't like the stares already he gets and now there will be more. Hopefully we can be a learning tool so others will learn about why the helmets are used.
I did find out that the helmet will cost $2200 and of course I don't have that. Lucas has some wonderful angels in his life so 1/2 of the cost is taken care of. I can not thank them enough. There of course is an $1100 left to pay back. I am the type that hate to owe anyone so my prayers include this. I need a way.  My sister started a raffle to help.
Today Lucas was rolling around and got turned around and bumped his head on the dresser.  It broke his little heart and he cried, I picked him up and he had to keep "fake" crying after that. He sure knows how to get to me.
The last day his little head will just be out there for me to kiss on all the time.
Lucas is sleeping now. I better do that too, long day of driving tomorrow.
(there are more photos of his head in my photos)

April 17, 2011

Sunday, April 17, 2011 3:30 PM, CDT

Playtime

Playing at daddy's today Lucas was on a blanket on the floor with his playgym.  He decided to roll and the next thing I knew he was gone. I got up and seen where he went. He rolled into the kitchen and was stuck up next to the cabinet.
I asked him what was he doing. He just smiled and gave me one of his little yells as his whole body stiffened up.  So cute.
We had to call Daddy in to see what he had done.  New trick.

April 13, 2011

Wednesday, April 13, 2011 2:00 PM, CDT

Another Milestone

Today First Steps came for their monthly visit to work with Lucas. He is doing very well. He was showing off and was trying to roll over for them.  After she left we were playing on the floor and Lucas rolled over from his back to his belly!  This is just amazing for him. I will explain time and again to everyone that these little task for a typical baby are easy and come natural. A child with down syndrome have weaker muscles and so things involving muscles take a little longer and need to be worked with.
Well he started rolling and just keeps going.  He likes the new found freedom, sometimes.
Yeah Lucas!!!!!